Look who’s finally home??! Mason was so excited to finally sleep in his own bed, take a bath, and “kiss” the fridge (😂). His incision has healed so well and he is back to normal (for the most part). It is so nice to be back and to see this on the lawn was a welcome treat. Thanks neighbors, family, and friends once again for helping us survive the last few weeks! You’re the absolute best! And thanks @signgypsiesstg for the adorable sign! #ohmason

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As for how the day went, it was wild again but manageable. We found this wiggle car in the playroom and took it for a ride all the way around floors 1 and 3. My brother came to let me take a quick nap and took Mason for a ride in a wheelchair and then Mason wanted to push him. 😊 At lunch in the cafeteria I told Mason we were going home Saturday and he crunched the chip in his hand and marched out of the room. When I caught up with him he was 3 steps from walking outside saying “I’m going home RIGHT. NOW. Today!” 😂 I understood his frustration completely! He calmed down and was compliant with all the requirements put up by the doctors because he really wants to leave this joint. His grandparents came to play music and gave me some well-needed respite tonight and he zonked out early. Cheers to making it this far! 🥂! #ohmason

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16 surgeries, countless doctor appointments, therapy, testing, etc. Of course, I wish Mason didn’t have to go through all this but I have to recognize the blessings that have come from it. My first and treasured blessing is the relationship I have built with Mason through these health issues. I have become more in tune with his needs, been able to stand my ground and suggest treatments doctors didn’t want to do or think would work, get him relief when he needs it most, know (for the most part) when he is hurting, and how to go around his sensory needs to accomplish what needs to be done. It’s a blessing because while I try and put in the work to fight for his needs to be met, I am also VERY aware that God is leading me and most of all, loving & caring about Mason. We’ll likely never have the answer to why his body does what it does, but each time we think we have exhausted our choices, some suggestion or idea comes out of nowhere. I have really found it to be true that we receive revelation “precept on precept” and exactly when we need it. Many other blessings (and miracles) I have experienced through this process and the biggest is the love and support that is poured out on us each time something like this happens. I can’t thank you enough for the continued prayers, taking care of my kids at home, meals, cards & packages sent, and expressions of encouragement that have lifted us up and made it so much easier to go through. I am also so grateful for a husband that takes the reigns and helps our other kids feel loved while our family is split for a time and his down-to-earth personality that keeps me grounded when emotions run high. I have truly learned how to serve by being one who is served a lot. Brandon and I have had to swallow our pride and allow help because frankly, we couldn’t do it without you. We couldn’t see the miracles take place in front our eyes if it weren’t for prayers sent to heaven for our sweet Mason. Lastly, a blessing of a resilient, patient, loving, happy soul of a son who honestly teaches me every single day how I can do and be better. Thank you for your kindness from the bottom of my heart! 💕

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This was us last night. AWAKE! Not sure what got into him but just as he and I were drifting off to sleep (or so I thought), he exclaimed, “I want to color!” And from color it was “watch a show” to “let’s go for a walk” to “let’s go to the cafeteria” to not leaving the nurses alone at the desk. Finally, around 4am he went to sleep, only to be up at 5am for an X-ray. 🤦🏼‍♀️ 🤷🏼‍♀️We won’t be going home today-hopefully tomorrow now -still boxes he needs to check off in order to be released. All in all-We are doing just fine!😊#ohmason

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Well, Mason is getting back to his old self. At noon, the nurse took him off his IV nutrients to motivate him to eat and drink more (didn’t really work), which means he had no tubes connected to him so he was feeling a little free and able to hop out of bed, out of the room whenever he wanted. Let’s say it was a little difficult to keep him contained all day long. Today the lack of sleep, lack of fresh air, being pregnant and whatever else caught up to me. There were a few mishaps today where I felt out of control and well, I cried. Up until now, I’ve been pretty even but today was exhausting. I know this is not about me and I know Mason has gone through far worse than I could ever imagine being put through (all the while with a smile on his face) so I’m not complaining in the least, but just trying to keep it real from a parent perspective. Mason was not as bubbly today and kind of spacey but loved the visit from Lily the pet therapy dog. We went in the playroom and he decided he was tired and we went back to the room to do some dressing changes, etc. The good news is...... we are on track to be released tomorrow (Friday)!!!! 🙌🏻 #ohmason

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