❤️Throughout this whole stay, Mason has been really prayerful🙏🏻-“please bless my belly won’t hurt” “please bless my daddy will come” “please bless I won’t feel the IV going in” and most recently, “please bless the nurses will find me the wii (the one and only on the whole floor)” “please bless #DonovanMitchell will make that shot” and “please bless the #utahjazz will win” 🥰 Guess what?! ALL of his prayers were answered (mine, too!) He knows right where to go for help. He would catch the nurses off guard when he would fold his arms and bow his head quickly before every poke and prod and once it registered, their faces softened and they smiled. Mason has a way of instilling faith and being a true “influencer” in all the most important ways. #ohmason

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From an extended time in surgery, Rapid Response, time in the ICU, a virus, then a bacteria, a huge abscess, a drain, countless tests and scans, and horrible pain—you might be wondering if this is all worth it. After all, this surgery was technically elective and we didn’t necessarily have to get it done, except that we did. . Ever since last summer’s festivities we planned (and were told to plan) on getting his reversal done, giving his body adequate time to rest over the following 6 months. . The past 6 months have been nothing short of bliss with him. I’m not even kidding. We turned a huge corner in managing his meds that made the true, sweet, funny, angelic Mason come out. Brandon and I could not get enough of him. There was/is something heavenly that oozed from him and it has been so beautiful to witness. . Mason regained his strength and took everything in stride these last few months. Not one complaint out of his mouth! Never does. He embraced his stoma bag and it only caused him a little anxiety when it needed to be changed out or had some issue with it. It wasn’t terrible, but it was messy, unpredictable, and no way to live life forever when there were still better (although still tedious) options. . Brandon and I both felt good going into the surgery and knew it was the right thing to do and even according to God’s will. Mason’s life has never been not directed by a sweet, loving Heavenly Father who knows Mason more than I do. I’ve said before that my confidence and faith in God’s perfect plan for Mason has never waivered- even when death came knocking time and time again. . Heavenly Father knows I accept His plan, trust Him—and in turn blesses me with peace and strength when I don’t think my heart can see this boy of mine suffer through one more thing! ❤️#ohmason

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“When will this pain go away?” whispered Mason. 😭 He was not feeling good again yesterday and complained of more pain and didn’t want to move. I just knew there had to be something up but his fevers weren’t too elevated and his heart rate was fast but not crazy so I just held my breath and waited. Last night Mason presented a super high fever and heart rate and showed signs of going septic so the nurse rallied the troops and got a plan going. They needed a contrast CT scan but that meant Mason had to drink liquid medicine which he absolutely never tolerates (it always comes back up with his gag reflex). That scan was important so we prayed really hard that he could drink it and it would taste like the Gatorade it was in. Our prayers were answered!! He drank every drop that he was supposed to and the second I opened the door to celebrate and tell the nurse—-it came right back up. 😔 He had to drink 1000 oz of Gatorade with the stuff in it and it just filled him to the brim. The good part is that enough had gone in his body that they were able to get the scan! Miracles people! The scan showed a giant abscess and pool of infection/puss in his pelvis which was/should be the cause of most of his pain. They said they won’t have to open him up again (phew!) but they can insert a drain to get all that gunk out. It might set us back 1-2 weeks depending on how things go with everything else but I’m feeling optimistic about it all! The possibilities the medical staff initially presented were pretty serious (more so than this) and so we are feeling really lucky we got this outcome of the scan instead! 🙌🏻 #ohmason

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Sums up the day. 🤒 #ohmason

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