Partners in crime! 📸 #ohmason

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👏🏻Sat in a chair today!👏🏻 Mason’s doing well. Still off the heart meds but put on different blood pressure medicine to manage the high bp. Mason has been feeling pain and has actually been letting us know when he is so we can help him! Yay! So far he has managed to keep his lungs clear (other than the edema) and cough some. Sitting in the chair helped and also tired him out. We got moved to a different room and it’s so much quieter and going to be better all around for healing. Still looking like a few more days in the ICU before we move upstairs but he’s making great strides! #ohmason #andbrandon😊

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Just as a reminder that the real Mason is in there somewhere— the respiratory therapist came to listen to him last night. She let Mason listen to his own heart. When she went take the stethoscope off him, Mason shook his little swollen finger at her and wouldn’t let her take them off 😂. She thought it was so funny that she let him and came back later to grab them. Big Day today! Ventilator out. No more heart meds. Going to wait and see how his heart does tomorrow and see if he needs the heart meds again. They stay in the body for 6-8 hours after so we will know later tonight or tomorrow how he is doing. Echocardiogram showed nothing concerning.🙌🏻 Ng tube (stomach fluid sucker outer) came out the same time as the breathing tube. 🙌🏻 He’s on the bi-pap machine now. As long as he is on this he will be in the ICU. His lungs are still has pulmonary edema and some gunk in there so we’ve still got a battle to fight but we are headed in the right direction! Keep those prayers coming!! 🙏🏻

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You guys he’s off the ventilator !!!😭😭😭😭 We all feel like a weight has lifted, especially Mason. He doesn’t want to talk because his mouth is sore but we got a smile. Brandon and I turned on some music and danced with glee! Our spirits have been renewed. THE POWER OF PRAYER IS REAL!!🙏🏻🙌🏻 #ohmason

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“Mason belongs to everyone” my brother-in-law said. . I thought about that statement for some time. . Who am I to keep him for myself? Mason’s personality is larger than life and truly lets his light shine bright which is evident by all of you people praying for his recovery. Today they sewed up his belly! He has a small drain but wound vac is gone. Changed his stoma bag. Going to do another test tomorrow to see if he can breathe on his own but he failed this morning so we shall see. Echocardiogram looked ok but tomorrow they are going to take him off the heart medicine to see how his heart performs without the medication. If the heart checks out and his breathing test is a go, we can move on from ICU land into a regular room. They said maybe another week but due to previous experiences (a.k.a. Mason style) I’m planning for at least 2 until we get out of this joint. . Again, can’t stress enough how much love we have felt. Mason is a special boy. Thanks for loving him as much as we do! ⭐️

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“A perfect body is not required to achieve a divine destiny. In fact, some of the sweetest spirits are housed in frail frames. Great spiritual strength is often developed by those with physical challenges precisely because they are challenged.” Russell M. Nelson . Mason was up most of the night fidgety and itchy from the morphine so they switched him to a different concoction today and he was able to finally rest. Today the doctors wanted to make sure his body had a chance to recover from the events of last night. His pain and comfort was managed well and they also started him slowly on a medicine that would help shed the fluid in his tissues. He’s my cute little Michelin Man at the moment (although his skin is tight, not squishy). . We got to come down off our adrenaline rush today and it was much needed. We feel so much peace and are being sustained by your prayers. We are more than humbled by your kindness. 💙 #ohmason

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I’ve had this scripture as my screensaver on my phone for awhile now. And today it has more meaning than I could ever say. Mason went into Cardiac Arrest tonight. He was stabilized. Then he went into Cardiac Arrest again 20 minutes later. And I watched it all happen. I shakily hurried and called Brandon after the first one started backed up against the wall because Code Blue was called and there were loads of people running in the room. “He’s coding!!!!!!!!!!” Was all I could say. My brother was with me and I don’t think it was coincidence because he is calm and collected in emergency situations and was actually helping the nurse move Mason when all of a sudden Mason took the dive. He spoke to Brandon and then went into help out. He stood at the top of his bed and held his airway open while they did CPR. Mason is still intubated but they were suctioning him and something happened to cause the arrest but at this point they don’t know why and may never know. They stabilized him and then for some reason he dive bombed again and I was now standing against the wall at the top of the bed after I had been talking to him and then quickly moved out of the way so they could do CPR again. “Mason!” I yelled. It took a bit to get him stable again. Doctors were talking to me and another one having me sign papers. It was my worst nightmare coming true. They suspected a blood clot and did an Echocardiogram to see how the heart was doing and to see if there were any blood clot there or possible pulmonary embolism (clot in the lungs). They didn’t see anything at that time. An hour or so after they got Mason comfortable again, they did a more in-depth Echocardiogram (on the heart). They found the lower part of the heart wasn’t pumping strong and said it was in the severe range and also one of his valves (nitro) is leaking due to stress of being revived. They gave him some meds to help his heart pump stronger. A lot more meds and management after that I won’t recount. Mason started waking up and being responsive to us. Brandon rushed up from St George and Mason remained stable the whole time. We aren’t out of the woods yet, but witnessed some amazing miracles today.

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I broke down for the first time tonight. How are we going to do this?! I can’t breathe thinking about it. I can’t breathe because there are so many unknowns. My son is in the ICU!!! WHAT IS HAPPENING. . How can I be feeling so much peace with it one second and right now my heart has never known such pain. . Up until this point in his life I have had perfect faith in God’s plan for Mason. In prior situations, I’ve always been amazed at how Mason manages to defy all odds. . Now that he’s basically fighting for his life and I’m forced to consider the “what ifs?,” I feel like I’m drowning. Are you kidding me?! This is too much. How are we doing this again?! . And then the song lyrics pop into my head, “Fear not, I am with thee O be not dismayed, the Lord is thy light and will still give thee aide. I’ll strengthen thee, help thee, and cause thee to stand. Upheld by thy righteous Omnipotent hand.” . And just like that, the peace returns. Applying our unwavering faith in God is how we will do it. #wegotthis #ohmason

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Mason did great today. Vitals stayed strong! Still watching blood pressure. He has been running a fever, too. He’s being pumped with fluids. More fluid is going to get him even more swollen but as soon as inflammation starts to go down, so will the swelling and his body will start to absorb the fluid in the right places. Mason is still intubated (machine is breathing for him) and will be for a day or maybe longer depending on if he can breathe on his own. All the pressure makes that a challenge. It feels like we have been here a week already! One day at a time, right?! Time for sleep...💤 #ohmason

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💙@#ohmason I love you.

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Mason took a turn for the worst with heart rate up to 180 (normal is 112 ish), crazy blood pressure, lots of pain, fever, swelling, and he’s only breathing out of the top of his lungs because the pressure from his very very distended belly is not letting him take a full breath. We took a Lifeflight helicopter to Cedar City airport (SGU is closed) and took the LifeFlight jet to the SLC airport where were transferred to an ambulance to take us to Primary’s. They are going to do a CT scan on his abdomen—suspecting infection and some sort of obstruction or scar tissue buildup. Possible surgery. It’s up in the air right now. Currently in the PICU (Pediatric Intensive Care Unit). Feeling peaceful so thanks for your prayers. #ohmason

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Day two: Made some progress. Then plateaued. Made a little more progress late tonight but still not wonderful. Super uncomfortable, in pain, and swollen. Super distended belly we are hoping to get looking better. We shall see what tomorrow brings. Hopefully we can get him outta here!#ohmason

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The night was uneventful but this morning we are on track sort of. Some bladder issues now we are trying figure out in addition. Baby steps! Every time Cali catches a glimpse of Mason she smiles so big at him and starts cooing and kicking her feet. She practically jumps out my arms she’s so excited. It’s the cutest! #ohmason

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From the fun pillows to the matching blanket, he’s getting the star treatment! And being the only kid on the pediatric floor doesn’t hurt either! #ohmason

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Mason has an impacted bowel and nothing we tried at home was working so we are going to try and take care of it here in St George. Hoping no complications show up but we’re always ready for them if they do! Mason was as white as a ghost and whimpering in pain. 😐I hate not knowing how to take the pain away—-hoping the doctors and staff will! 😷#sowedonthavetogotoprimarys #eventhoughweloveitthere #butletsnotthistime #mmk

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